E-LIB Suche - Ergebnisse für: Davies, Elin Haf

1

A patient-centred and multi-stakeholder co-designed observa..:

Saraff, Vrinda ; Boot, Annemieke M. ; Linglart, Agnès...
PLOS ONE. 19 (2024) 1 - p. e0295080 , 2024

Link: https://doi.org/10.1371/..

2

Protocol for a mixed-methods study to develop and feasibili..:

Hughes, Sarah E ; McMullan, Christel ; Aiyegbusi, Olalekan Lee...
BMJ Open. 14 (2024) 3 - p. e085392 , 2024

Link: https://doi.org/10.1136/..

3

Development and usability testing of an electronic patient-..:

McMullan, Christel ; Retzer, Ameeta ; Hughes, Sarah E....
Journal of Patient-Reported Outcomes. 7 (2023) 1 - p. , 2023

Link: https://doi.org/10.1186/..

4

Precision Medicine for More Oxygen (P4O2)—Study Design and ..:

Baalbaki, Nadia ; Blankestijn, Jelle M. ; Abdel-Aziz, Mahmoud I....
Journal of Personalized Medicine. 13 (2023) 7 - p. 1060 , 2023

Link: https://doi.org/10.3390/..

5

Towards the international interoperability of clinical rese..:

Nabbout, Rima ; Zanello, Galliano ; Baker, Dixie...
Orphanet Journal of Rare Diseases. 18 (2023) 1 - p. , 2023

Link: https://doi.org/10.1186/..

6

Accelerometer‐derived sleep measures in idiopathic dystonia..:

Bailey, Grace A ; Wadon, Megan E. ; Komarzynski, Sandra...
Brain and Behavior. 13 (2023) 9 - p. , 2023

Link: https://doi.org/10.1002/..

7

266th ENMC International Workshop: Remote delivery of clini..:

Alfano, Lindsay N. ; James, Meredith K. ; Ramdharry, Gita M....
Neuromuscular Disorders. 33 (2023) 4 - p. 339-348 , 2023

Link: https://doi.org/10.1016/..

8

Considerations for patient and public involvement and engag..:

Aiyegbusi, Olalekan Lee ; McMullan, Christel ; Hughes, Sarah E....
Nature Medicine. , 2023

Link: https://doi.org/10.1038/..

9

Digitally enabled decentralised research: opportunities to ..:

Aiyegbusi, Olalekan Lee ; Davies, Elin Haf ; Myles, Puja...
BMJ Evidence-Based Medicine. 28 (2023) 5 - p. 328-331 , 2023

Link: https://doi.org/10.1136/..

10

Patient-reported, health economic and psychosocial outcomes..:

Buchholz, Maresa ; Weber, Niklas ; Borel, Stephanie...
BMJ Open. 13 (2023) 8 - p. e075736 , 2023

Link: https://doi.org/10.1136/..

11

A global neuronopathic gaucher disease registry (GARDIAN): ..:

Collin-Histed, Tanya ; Stoodley, Madeline ; Beusterien, Kathleen...
Orphanet Journal of Rare Diseases. 18 (2023) 1 - p. , 2023

Link: https://doi.org/10.1186/..

12

A collaborative approach to address the unmet needs of pati..:

Collin-Histed, Tanya ; Jaffe, Dena ; Revel-Vilk, Shoshana...
Molecular Genetics and Metabolism. 138 (2023) 2 - p. 107058 , 2023

Link: https://doi.org/10.1016/..

13

Co-production of a feasibility trial of pacing intervention..:

Turner, Grace M. ; McMullan, Christel ; Aiyegbusi, Olalekan Lee...
Research Involvement and Engagement. 9 (2023) 1 - p. , 2023

Link: https://doi.org/10.1186/..

14

So You Want to Build Your Disease's First Online Patient Re..:

Wicks, Paul ; Wahlstrom-Edwards, Lindsey ; Fillingham, Sam..
The Patient - Patient-Centered Outcomes Research. 16 (2023) 3 - p. 183-199 , 2023

Link: https://doi.org/10.1007/..

15

Development and validation of the symptom burden questionna..:

Hughes, Sarah E ; Haroon, Shamil ; Subramanian, Anuradhaa...
BMJ. , 2022

Link: https://doi.org/10.1136/..