E-LIB Suche - Ergebnisse für: Guardiola-Vilarroig, Sandra

1

Demora diagnóstica en enfermedades raras: entre el miedo y ..:

Páramo-Rodríguez, Lucía ; Cavero-Carbonell, Clara ; Guardiola-Vilarroig, Sandra...
Gaceta Sanitaria. 37 (2023) - p. 102272 , 2023

Link: https://doi.org/10.1016/..

2

Rare Diseases: Needs and Impact for Patients and Families: ..:

Gimenez-Lozano, Cristina ; Páramo-Rodríguez, Lucía ; Cavero-Carbonell, Clara...
International Journal of Environmental Research and Public Health. 19 (2022) 16 - p. 10366 , 2022

Link: https://doi.org/10.3390/..

3

The interoperability between the Spanish version of the Int..:

Rico, Juan ; Echevarría-González de Garibay, Luis Javier ; García-López, María...
Orphanet Journal of Rare Diseases. 16 (2021) 1 - p. , 2021

Link: https://doi.org/10.1186/..

4

Enfermedad de Wilson en España: validación de fuentes utili..:

Moreno-Marro, Sandra ; Barrachina-Bonet, Laia ; Páramo-Rodríguez, Lucía...
Gaceta Sanitaria. 35 (2021) 6 - p. 551-558 , 2021

Link: https://doi.org/10.1016/..

5

The Osteogenesis Imperfecta in the Valencia Region (Spain),..:

Canet-Chaqués, Iris ; Páramo-Rodríguez, Lucía ; Gimeno-Martos, Silvia...
European Journal of Medical Genetics. 61 (2018) 9 - p. 568 , 2018

Link: https://doi.org/10.1016/..

6

La enfermedad de Huntington en la Comunitat Valenciana:

Páramo-Rodríguez, Lucía ; Moreno-Marro, Sandra ; Guardiola-Vilarroig, Sandra..
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10478134/. , 2023

Link: http://www.ncbi.nlm.nih...

7

Rare Diseases: Needs and Impact for Patients and Families: ..:

Gimenez-Lozano, Cristina ; Páramo-Rodríguez, Lucía ; Cavero-Carbonell, Clara...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9408677/. , 2022

Link: http://www.ncbi.nlm.nih...

8

The interoperability between the Spanish version of the Int..:

Rico, Juan ; Echevarría-González de Garibay, Luis Javier ; García-López, María...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7941896/. , 2021

Link: http://www.ncbi.nlm.nih...

9

Vigilancia de las enfermedades raras en España: el Registro..:

Vicente, Esther ; Ardanaz, Eva ; Ramalle-Gómara, Enrique...
https://www.mscbs.gob.es/biblioPublic/publicaciones/recursos_propios/resp/revista_cdrom/VOL95/C_ESPECIALES/RS95C_202111186.pdf. , 2021

Link: https://hdl.handle.net/2..

10

Enfermedad de Wilson en España: validación de fuentes utili..:

Moreno-Marro, Sandra ; Barrachina-Bonet, Laia ; Páramo-Rodríguez, Lucía...
https://doi.org/10.1016/j.gaceta.2020.07.011. , 2021

Link: https://hdl.handle.net/2..

11

Prevalencia de la anticoagulación oral y calidad de su segu..:

Boned-Ombuena, Ana ; Pérez-Panadés, Jordi ; López-Maside, Aurora...
Atención Primaria. 49 (2017) 9 - p. 534-548 , 2017

Link: https://doi.org/10.1016/..

12

Demora diagnóstica en enfermedades raras: entre el miedo y ..:

Lucía Páramo-Rodríguez ; Clara Cavero-Carbonell ; Sandra Guardiola-Vilarroig...
http://www.sciencedirect.com/science/article/pii/S0213911122001686. , 2023

Link: https://doi.org/10.1016/..

13

Rare Diseases: Needs and Impact for Patients and Families: ..:

Cristina Gimenez-Lozano ; Lucía Páramo-Rodríguez ; Clara Cavero-Carbonell...
https://www.mdpi.com/1660-4601/19/16/10366. , 2022

Link: https://doi.org/10.3390/..

14

Rare Diseases: Needs and Impact for Patients and Families: ..:

Cristina Gimenez-Lozano ; Lucía Páramo-Rodríguez ; Clara Cavero-Carbonell...
https://dx.doi.org/10.3390/ijerph191610366. , 2022

Link: https://doi.org/10.3390/..

15

Enfermedad de Wilson en España: validación de fuentes utili..:

Sandra Moreno-Marro ; Laia Barrachina-Bonet ; Lucía Páramo-Rodríguez...
http://www.sciencedirect.com/science/article/pii/S0213911120302016. , 2021

Link: https://doi.org/10.1016/..