E-LIB Suche - Ergebnisse für: Hedley, Victoria

1

Learning from conect4children: A Collaborative Approach tow..:

Sen, Anando ; Hedley, Victoria ; Degraeuwe, Eva...
Data. 9 (2024) 4 - p. 55 , 2024

Link: https://doi.org/10.3390/..

2

Mapping of Data-Sharing Repositories for Paediatric Clinica..:

Felisi, Mariagrazia ; Bonifazi, Fedele ; Toma, Maddalena...
Data. 9 (2024) 4 - p. 59 , 2024

Link: https://doi.org/10.3390/..

3

Standardizing Paediatric Clinical Data: The Development of ..:

Sen, Anando ; Hedley, Victoria ; Owen, John...
Journal of the Society for Clinical Data Management; Fall 2022 - Innovative Implementation of CDISC Standards. 2 (2023) 3 - p. , 2023

Link: https://doi.org/10.47912..

4

Together4RD position statement on collaboration between Eur..:

Hedley, Victoria ; Bolz-Johnson, Matt ; Hernando, Ines...
Orphanet Journal of Rare Diseases. 18 (2023) 1 - p. , 2023

Link: https://doi.org/10.1186/..

5

How Can a Clinical Data Modelling Tool Be Used to Represent..:

Amadi, Chima ; Leary, Rebecca ; Palmeri, Avril...
Applied Sciences. 12 (2022) 3 - p. 1604 , 2022

Link: https://doi.org/10.3390/..

6

Understanding paediatric data standards challenges through ..:

Sen, Anando ; Palmeri, Avril ; Lee, Joanne...
The International Journal of Health Planning and Management. 38 (2022) 2 - p. 416-429 , 2022

Link: https://doi.org/10.1002/..

7

Rare Diseases:

, In: Handbook Integrated Care,

Castro, Raquel ; de Chalendar, Myriam ; Vajda, Ildikó... - p. 763-782 , 2021

Link: https://doi.org/10.1007/..

8

Rare diseases: past achievements and future prospects:

Tumiene, Birute ; Kristoffersson, Ulf ; Hedley, Victoria.
Journal of Community Genetics. 12 (2021) 2 - p. 205-206 , 2021

Link: https://doi.org/10.1007/..

9

Shaping national plans and strategies for rare diseases in ..:

Hedley, Victoria ; Bottarelli, Valentina ; Weinman, Ariane.
Journal of Community Genetics. 12 (2021) 2 - p. 207-216 , 2021

Link: https://doi.org/10.1007/..

10

Implementation and relevance of FAIR data principles in bio..:

Wise, John ; de Barron, Alexandra Grebe ; Splendiani, Andrea...
Drug Discovery Today. 24 (2019) 4 - p. 933-938 , 2019

Link: https://doi.org/10.1016/..

11

How the EUCERD Joint Action supported initiatives on Rare D..:

Lynn, Stephen ; Hedley, Victoria ; Atalaia, Antonio..
European Journal of Medical Genetics. 60 (2017) 3 - p. 185-189 , 2017

Link: https://doi.org/10.1016/..

12

The context for the thematic grouping of rare diseases to f..:

Evangelista, Teresinha ; Hedley, Victoria ; Atalaia, Antonio...
Orphanet Journal of Rare Diseases. 11 (2016) 1 - p. , 2016

Link: https://doi.org/10.1186/..

13

Challenges raised by cross-border testing of rare diseases ..:

Pohjola, Pia ; Hedley, Victoria ; Bushby, Kate.
European Journal of Human Genetics. 24 (2016) 11 - p. 1547-1552 , 2016

Link: https://doi.org/10.1038/..

14

Paediatric User Guide (Data Standards User Guide for Paedia..:

Owen, John ; Aurich, Beate ; Bae, Hingung...
info:eu-repo/grantAgreement/EC/H2020/777389/. , 2023

Link: https://zenodo.org/recor..

15

Standardizing Paediatric Clinical Data: The Development of ..:

Sen, Anando ; Hedley, Victoria ; Owen, John...
http://arxiv.org/abs/2302.13340. , 2023

Link: http://arxiv.org/abs/230..