E-LIB Suche - Ergebnisse für: Vroom, E.

1

P203 Proven interoperability of five neuromuscular rare dis..:

't Hoen, P. ; Lalout, N. ; Vroom, E....
Neuromuscular Disorders. 33 (2023) - p. S145 , 2023

Link: https://doi.org/10.1016/..

2

P135 Facilitators and barriers in living the desired adult ..:

Veenhuizen, Y. ; Merkenhof, L. ; Vroom, E....
Neuromuscular Disorders. 33 (2023) - p. S81 , 2023

Link: https://doi.org/10.1016/..

3

DMD/BMD – OUTCOME MEASURES:

Meijer-Krom 1, Y. ; van de Velde, N. ; Ikelaar, N....
Neuromuscular Disorders. 31 (2021) - p. S87-S88 , 2021

Link: https://doi.org/10.1016/..

4

REGISTRIES AND CARE OF NMD:

Atalaia, A. ; Bakker, S. ; D'Angelo, C....
Neuromuscular Disorders. 31 (2021) - p. S154 , 2021

Link: https://doi.org/10.1016/..

5

249th ENMC International Workshop: The role of brain dystro..:

Hendriksen, Jos G.M. ; Thangarajh, Mathula ; Kan, Hermien E....
Neuromuscular Disorders. 30 (2020) 9 - p. 782-794 , 2020

Link: https://doi.org/10.1016/..

6

DMD – BIOMARKERS & OUTCOME MEASURES:

Verhaart, I. ; 'tHoen, P. ; Roos, M..
Neuromuscular Disorders. 30 (2020) - p. S86 , 2020

Link: https://doi.org/10.1016/..

7

EP.48Informing paediatric clinical research participants: a..:

Crow, B. ; Turner, C. ; Athanasiou, D....
Neuromuscular Disorders. 29 (2019) - p. S115 , 2019

Link: https://doi.org/10.1016/..

8

The patient's view on rare disease trial design – a qualita..:

Gaasterland, C. M. W. ; van der Weide, M. C. Jansen – ; du Prie – Olthof, M. J....
Orphanet Journal of Rare Diseases. 14 (2019) 1 - p. , 2019

Link: https://doi.org/10.1186/..

9

EP.79The impact of ventilation on non-ambulatory patients w..:

Verhaart, I. ; Hofmeister, S. ; Franken-Verbeek, M....
Neuromuscular Disorders. 29 (2019) - p. S175 , 2019

Link: https://doi.org/10.1016/..

10

P.147Muscle biopsies in clinical trials for Duchenne muscul..:

Verhaart, I. ; Johnson, A. ; Thakrar, S....
Neuromuscular Disorders. 29 (2019) - p. S91 , 2019

Link: https://doi.org/10.1016/..

11

236th ENMC International Workshop Bone protective therapy i..:

Wong, Sze Choong ; Straub, Volker ; Ward, Leanne M....
Neuromuscular Disorders. 29 (2019) 3 - p. 251-259 , 2019

Link: https://doi.org/10.1016/..

12

EP.78Care for Duchenne – a structured approach to optimize ..:

Krom, Y. ; Vroom, E. ; Horemans, A....
Neuromuscular Disorders. 29 (2019) - p. S175 , 2019

Link: https://doi.org/10.1016/..

13

DUCHENNE MUSCULAR DYSTROPHY – CLINICAL:

Verhaart, I. ; Fiorotto, M. ; De Luca, A....
Neuromuscular Disorders. 28 (2018) - p. S37 , 2018

Link: https://doi.org/10.1016/..

14

The POWER-tool: Recommendations for involving patient repre..:

Gaasterland, C.M.W. ; Jansen-van der Weide, M.C. ; Vroom, E....
Health Policy. 122 (2018) 12 - p. 1287-1294 , 2018

Link: https://doi.org/10.1016/..

15

Vision DMD: Vamorolone (VBP15) drug development program for..:

Guglieri, M. ; Clemens, P. ; Cnaan, A....
European Journal of Paediatric Neurology. 21 (2017) - p. e238 , 2017

Link: https://doi.org/10.1016/..