E-LIB Suche - Ergebnisse für: Westerheim, Ingunn

1

The IMPACT survey: a mixed methods study to understand the ..:

Westerheim, Ingunn ; Hart, Tracy ; van Welzenis, Taco...
Orphanet Journal of Rare Diseases. 19 (2024) 1 - p. , 2024

Link: https://doi.org/10.1186/..

2

The IMPACT Survey: the economic impact of osteogenesis impe..:

Hart, Tracy ; Westerheim, Ingunn ; van Welzenis, Taco...
Orphanet Journal of Rare Diseases. 19 (2024) 1 - p. , 2024

Link: https://doi.org/10.1186/..

3

OA19 Self-reported prevalence and impact of clinical signs,..:

Semler, Oliver ; Wekre, Lena L ; Westerheim, Ingunn...
Rheumatology. 63 (2024) Supplement_1 - p. , 2024

Link: https://doi.org/10.1093/..

4

The patient clinical journey and socioeconomic impact of os..:

Rapoport, Maria ; Bober, Michael B. ; Raggio, Cathleen...
Orphanet Journal of Rare Diseases. 18 (2023) 1 - p. , 2023

Link: https://doi.org/10.1186/..

5

Patient-reported experience of clinical care of osteogenesi..:

Smyth, Debra ; Hytiris, Monica ; Kelday, Coreen...
Frontiers in Public Health. 10 (2023) - p. , 2023

Link: https://doi.org/10.3389/..

6

Patients' priorities and expectations on an EU registry for..:

Javaid, Muhammad Kassim ; Mordenti, Marina ; Boarini, Manila...
Orphanet Journal of Rare Diseases. 16 (2021) 1 - p. , 2021

Link: https://doi.org/10.1186/..

7

Patient-reported experience of clinical care of osteogenesi..:

Smyth, Debra ; Hytiris, Monica ; Kelday, Coreen...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9850226/. , 2023

Link: http://www.ncbi.nlm.nih...

8

The patient clinical journey and socioeconomic impact of os..:

Rapoport, Maria ; Bober, Michael B ; Raggio, Cathleen...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9945474/. , 2023

Link: http://www.ncbi.nlm.nih...

9

Patient-reported experience of clinical care of osteogenesi..:

Smyth, Debra ; Hytiris, Monica ; Kelday, Coreen...
https://eprints.gla.ac.uk/260144/1/260144.pdf. , 2023

Link: https://eprints.gla.ac.u..

10

Patient-reported experience of clinical care of osteogenesi..:

Smyth, Debra ; Hytiris, Monica ; Kelday, Coreen...
https://discovery.ucl.ac.uk/id/eprint/10164084/1/Parekh_Patient-reported%20experience%20of%20clinical%20care%20of%20osteogenesis%20imperfecta%20%28OI%29%20during%20the%20COVID-19%20pandemic_VoR.pdf. , 2022

Link: https://discovery.ucl.ac..

11

Patients' priorities and expectations on an EU registry for..:

Javaid, Muhammad Kassim ; Mordenti, Marina ; Boarini, Manila...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8564998/. , 2021

Link: http://www.ncbi.nlm.nih...

12

The patient clinical journey and socioeconomic impact of os..:

Maria Rapoport ; Michael B. Bober ; Cathleen Raggio...
https://doi.org/10.1186/s13023-023-02627-3. , 2023

Link: https://doi.org/10.1186/..

13

Patients' priorities and expectations on an EU registry for..:

Muhammad Kassim Javaid ; Marina Mordenti ; Manila Boarini...
https://doi.org/10.1186/s13023-021-02069-9. , 2021

Link: https://doi.org/10.1186/..

14

Additional file 2 of Patients' priorities and expectations ..:

Muhammad Kassim Javaid (11645414) ; Marina Mordenti (11645417) ; Manila Boarini (11645420)...
https://figshare.com/articles/presentation/Additional_file_2_of_Patients_priorities_and_expectations_on_an_EU_registry_for_rare_bone_and_mineral_conditions/16928210. , 2021

Link: https://doi.org/10.6084/..

15

Additional file 1 of Patients' priorities and expectations ..:

Muhammad Kassim Javaid (11645414) ; Marina Mordenti (11645417) ; Manila Boarini (11645420)...
https://figshare.com/articles/journal_contribution/Additional_file_1_of_Patients_priorities_and_expectations_on_an_EU_registry_for_rare_bone_and_mineral_conditions/16928207. , 2021

Link: https://doi.org/10.6084/..