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Tingley, Kylie
55
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Online (55)
Mediatypes
Articles (Online) (23)
OpenAccess-fulltext (32)
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?
1
Assessing the quality and value of metabolic chart data for..:
Iverson, Ryan
;
Taljaard, Monica
;
Geraghty, Michael T.
...
BMC Pediatrics. 24 (2024) 1 - p. , 2024
Link:
https://doi.org/10.1186/..
?
2
Development of a core outcome set for mucopolysaccharidoses..:
Howie, Alison H.
;
Wyatt, Alexandra
;
Inbar-Feigenberg, Michal
...
Molecular Genetics and Metabolism. 138 (2023) 2 - p. 107154 , 2023
Link:
https://doi.org/10.1016/..
?
3
Families' healthcare experiences for children with inherite..:
Chow, Andrea J
;
Iverson, Ryan
;
Lamoureux, Monica
...
BMJ Open. 12 (2022) 2 - p. e055664 , 2022
Link:
https://doi.org/10.1136/..
?
4
Patient and family engagement in the development of core ou..:
Vanderhout, Shelley M.
;
Smith, Maureen
;
Pallone, Nicole
...
Research Involvement and Engagement. 7 (2021) 1 - p. , 2021
Link:
https://doi.org/10.1186/..
?
5
Stakeholder perspectives on clinical research related to th..:
In collaboration with the Canadian Inherited Metabolic Diseases Research Network
;
Tingley, Kylie
;
Coyle, Doug
...
Orphanet Journal of Rare Diseases. 16 (2021) 1 - p. , 2021
Link:
https://doi.org/10.1186/..
?
6
Establishing a core outcome set for mucopolysaccharidoses (..:
Howie, Alison H.
;
Tingley, Kylie
;
Inbar-Feigenberg, Michal
...
Trials. 22 (2021) 1 - p. , 2021
Link:
https://doi.org/10.1186/..
?
7
Correction to: Establishing a core outcome set for mucopoly..:
Howie, Alison H.
;
Tingley, Kylie
;
Inbar-Feigenberg, Michal
...
Trials. 22 (2021) 1 - p. , 2021
Link:
https://doi.org/10.1186/..
?
8
Developments in evidence creation for treatments of inborn ..:
Stockler‐Ipsiroglu, Sylvia
;
Potter, Beth K.
;
Yuskiv, Nataliya
...
Journal of Inherited Metabolic Disease. 44 (2020) 1 - p. 88-98 , 2020
Link:
https://doi.org/10.1002/..
?
9
Outcomes in pediatric studies of medium-chain acyl-coA dehy..:
Canadian Inherited Metabolic Diseases Research Network
;
Pugliese, Michael
;
Tingley, Kylie
...
Orphanet Journal of Rare Diseases. 15 (2020) 1 - p. , 2020
Link:
https://doi.org/10.1186/..
?
10
Evaluation of the quality of clinical data collection for a..:
on behalf of the Canadian Inherited Metabolic Diseases Research Network
;
Tingley, Kylie
;
Lamoureux, Monica
...
Orphanet Journal of Rare Diseases. 15 (2020) 1 - p. , 2020
Link:
https://doi.org/10.1186/..
?
11
Health Care for Mitochondrial Disorders in Canada: A Survey..:
Paik, Karen
;
Lines, Matthew A.
;
Chakraborty, Pranesh
...
Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques. 46 (2019) 6 - p. 717-726 , 2019
Link:
https://doi.org/10.1017/..
?
12
Using a meta-narrative literature review and focus groups w..:
in collaboration with the Canadian Inherited Metabolic Diseases Research Network
;
Tingley, Kylie
;
Coyle, Doug
...
Orphanet Journal of Rare Diseases. 13 (2018) 1 - p. , 2018
Link:
https://doi.org/10.1186/..
?
13
Establishing core outcome sets for phenylketonuria (PKU) an..:
In collaboration with the Canadian Inherited Metabolic Diseases Research Network
;
Potter, Beth K.
;
Hutton, Brian
...
Trials. 18 (2017) 1 - p. , 2017
Link:
https://doi.org/10.1186/..
?
14
Translating rare-disease therapies into improved care for p..:
Potter, Beth K.
;
Khangura, Sara D.
;
Tingley, Kylie
..
Genetics in Medicine. 18 (2016) 2 - p. 117-123 , 2016
Link:
https://doi.org/10.1038/..
?
15
Experiences of caregivers of children with inherited metabo..:
on behalf of the Canadian Inherited Metabolic Diseases Research Network (CIMDRN)
;
Siddiq, Shabnaz
;
Wilson, Brenda J.
...
Orphanet Journal of Rare Diseases. 11 (2016) 1 - p. , 2016
Link:
https://doi.org/10.1186/..
1-15