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Tingley, Kylie
32
results:
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1
Families' healthcare experiences for children with inherite..:
Chow, Andrea J
;
Iverson, Ryan
;
Lamoureux, Monica
...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8867352/. , 2022
Link:
http://www.ncbi.nlm.nih...
?
2
Correction to: Establishing a core outcome set for mucopoly..:
Howie, Alison H
;
Tingley, Kylie
;
Inbar-Feigenberg, Michal
...
Trials. 2021 Dec 09;22(1):893. , 2022
Link:
http://hdl.handle.net/19..
?
3
Patient and family engagement in the development of core ou..:
Vanderhout, Shelley M
;
Smith, Maureen
;
Pallone, Nicole
...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8439069/. , 2021
Link:
http://www.ncbi.nlm.nih...
?
4
Establishing a core outcome set for mucopolysaccharidoses (..:
Howie, Alison H
;
Tingley, Kylie
;
Inbar-Feigenberg, Michal
...
Trials. 2021 Nov 17;22(1):816. , 2021
Link:
http://hdl.handle.net/19..
?
5
Stakeholder perspectives on clinical research related to th..:
Tingley, Kylie
;
Coyle, Doug
;
Graham, Ian D
...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7805116/. , 2021
Link:
http://www.ncbi.nlm.nih...
?
6
Outcomes in pediatric studies of medium-chain acyl-coA dehy..:
Pugliese, Michael
;
Tingley, Kylie
;
Chow, Andrea
...
Orphanet Journal of Rare Diseases. 2020 Jan 14;15(1):12. , 2020
Link:
http://hdl.handle.net/19..
?
7
Evaluation of the quality of clinical data collection for a..:
Tingley, Kylie
;
Lamoureux, Monica
;
Pugliese, Michael
...
https://ir.lib.uwo.ca/paedpub/455. , 2020
Link:
https://ir.lib.uwo.ca/pa..
?
8
Evaluation of the quality of clinical data collection for a..:
Tingley, Kylie
;
Lamoureux, Monica
;
Pugliese, Michael
...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7149838/. , 2020
Link:
http://www.ncbi.nlm.nih...
?
9
Outcomes in pediatric studies of medium-chain acyl-coA dehy..:
Pugliese, Michael
;
Tingley, Kylie
;
Chow, Andrea
...
https://ir.lib.uwo.ca/paedpub/472. , 2020
Link:
https://ir.lib.uwo.ca/pa..
?
10
Evaluation of the quality of clinical data collection for a..:
Tingley, Kylie
;
Lamoureux, Monica
;
Pugliese, Michael
...
Orphanet Journal of Rare Diseases. 2020 Apr 10;15(1):89. , 2020
Link:
http://hdl.handle.net/19..
?
11
Developments in evidence creation for treatments of inborn ..:
Stockler‐Ipsiroglu, Sylvia
;
Potter, Beth K
;
Yuskiv, Nataliya
...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7891579/. , 2020
Link:
http://www.ncbi.nlm.nih...
?
12
Using a meta-narrative literature review and focus groups w..:
Tingley, Kylie
;
Coyle, Doug
;
Graham, Ian D
... , 2018
Link:
http://hdl.handle.net/24..
?
13
Establishing core outcome sets for phenylketonuria (PKU) an..:
Potter, Beth K
;
Hutton, Brian
;
Clifford, Tammy J
... , 2017
Link:
http://hdl.handle.net/24..
?
14
Experiences of caregivers of children with inherited metabo..:
Siddiq, Shabnaz
;
Wilson, Brenda
;
Graham, Ian
...
http://www.ojrd.com/content/11/1/168. , 2016
Link:
http://www.ojrd.com/cont..
?
15
Scoping review of patient- and family-oriented outcomes and..:
Khangura, Sara D
;
Karaceper, Maria D
;
Trakadis, Yannis
...
http://www.biomedcentral.com/1471-2431/15/7. , 2015
Link:
http://www.biomedcentral..
1-15