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Millis, Nicole
20  results:
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1

'Integrating Ethics and Equity with Economics and Effective..:

Kariyawasam, Didu S. ; Scarfe, Joanne ; Meagher, Christian...
PLOS ONE.  19 (2024)  3 - p. e0299336 , 2024
Link: https://doi.org/10.1371/..
 
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2

Informing a national rare disease registry strategy in Aust..:

Ruseckaite, Rasa ; Caruso, Marisa ; Mudunna, Chethana...
BMC Health Services Research.  23 (2023)  1 - p. , 2023
Link: https://doi.org/10.1186/..
 
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3

Current state of rare disease registries and databases in A..:

Ruseckaite, Rasa ; Mudunna, Chethana ; Caruso, Marisa...
Orphanet Journal of Rare Diseases.  18 (2023)  1 - p. , 2023
Link: https://doi.org/10.1186/..
 
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4

The involvement of rare disease patient organisations in th..:

Nguyen, Christina Q. ; Alba-Concepcion, Kristine ; Palmer, Elizabeth E....
Orphanet Journal of Rare Diseases.  17 (2022)  1 - p. , 2022
Link: https://doi.org/10.1186/..
 
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5

View from inside: Patient advocacy in guiding policy develo..:

Millis, Nicole
Journal of Inherited Metabolic Disease.  45 (2022)  5 - p. 866-871 , 2022
Link: https://doi.org/10.1002/..
 
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6

Rare diseases research and policy in Australia: On the jour..:

Bhattacharya, Kaustuv ; Millis, Nicole ; Jaffe, Adam.
Journal of Paediatrics and Child Health.  57 (2021)  6 - p. 778-781 , 2021
Link: https://doi.org/10.1111/..
 
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7

Protecting the rare during a rare pandemic:

Baynam, Gareth S ; Wicking, Carol ; Bhattacharya, Kaustuv.
Medical Journal of Australia.  213 (2020)  2 - p. 94 , 2020
Link: https://doi.org/10.5694/..
 
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8

Rare disease registries: a call to action:

Lacaze, Paul ; Millis, Nicole ; Fookes, Megan...
Internal Medicine Journal.  47 (2017)  9 - p. 1075-1079 , 2017
Link: https://doi.org/10.1111/..
 
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9

Current state of rare disease registries and databases in A..:

Ruseckaite, Rasa ; Mudunna, Chethana ; Caruso, Marisa...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10373259/.  , 2023
Link: http://www.ncbi.nlm.nih...
 
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10

Informing a national rare disease registry strategy in Aust..:

Ruseckaite, Rasa ; Caruso, Marisa ; Mudunna, Chethana...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10619239/.  , 2023
Link: http://www.ncbi.nlm.nih...
 
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11

The involvement of rare disease patient organisations in th..:

Nguyen, Christina Q ; Alba-Concepcion, Kristine ; Palmer, Elizabeth E...
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9014615/.  , 2022
Link: http://www.ncbi.nlm.nih...
 
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12

Rare disease registries: a call to action:

Lacaze, Paul ; Millis, Nicole ; Fookes, Megan...
https://ro.ecu.edu.au/ecuworkspost2013/3495.  , 2017
Link: https://ro.ecu.edu.au/ec..
 
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13

Rare disease registries:a call to action:

Lacaze, Paul ; Millis, Nicole ; Fookes, Megan...
Lacaze , P , Millis , N , Fookes , M , Zurynski , Y , Jaffe , A , Bellgard , M , Winship , I , McNeil , J & Bittles , A H 2017 , ' Rare disease registries : a call to action ' , Internal Medicine Journal , vol. 47 , no. 9 , pp. 1075-1079 . https://doi.org/10.1111/imj.13528.  , 2017
Link: https://research.monash...
 
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14

Current state of rare disease registries and databases in A..:

Rasa Ruseckaite ; Chethana Mudunna ; Marisa Caruso...
https://doi.org/10.1186/s13023-023-02823-1.  , 2023
Link: https://doi.org/10.1186/..
 
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15

Additional file 1 of Informing a national rare disease regi..:

Rasa Ruseckaite ; Marisa Caruso ; Chethana Mudunna...
doi:10.6084/m9.figshare.24472404.v1.  , 2023
Link: https://doi.org/10.6084/..
 
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