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Sylvia von Mackensen
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1

# 1567/Developing Short Forms from Full Forms for Disease S..:

Schmidt, Silke ; Sylvia von Mackensen ; Holger Muehlan..
Quality of Life Research.  13 (2004)  9 - p. 1526 ff. , 2004
Link: https://www.jstor.org/st..
 
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2

# 1390/Fieldtesting of the HAEMO-QOL Questionnaire for Chil..:

Sylvia von. Mackensen ; Monika Bullinger
Quality of Life Research.  12 (2003)  7 - p. 775 ff. , 2003
Link: https://www.jstor.org/st..
 
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3

Concizumab prophylaxis in persons with hemophilia A or B wi..:

Tran, Huyen ; von Mackensen, Sylvia ; Abraham, Aby...
Research and Practice in Thrombosis and Haemostasis.  8 (2024)  4 - p. 102476 , 2024
Link: https://doi.org/10.1016/..
 
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4

Cross-cultural assessment of the influence of the COVID-19 ..:

von Mackensen, Sylvia ; Santaella, Maria E. ; Nichols, Cynthia D....
Expert Review of Hematology.  16 (2023)  12 - p. 1107-1123 , 2023
Link: https://doi.org/10.1080/..
 
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5

Gene Therapy in Hemophilia: A Transformational Patient Expe..:

Rasul, Enayet ; Hallock, Ryan ; Hellmann, Magnus...
Journal of Patient Experience.  10 (2023)  - p. , 2023
Link: https://doi.org/10.1177/..
 
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6

Association of patient, treatment and disease characteristi..:

Hay, Charles R. M. ; Makris, Michael ; Shima, Midori...
Haemophilia.  30 (2023)  1 - p. 106-115 , 2023
Link: https://doi.org/10.1111/..
 
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7

Efficacy and safety in patients with haemophilia A switchin..:

Santoro, Cristina ; Fuh, Beng ; Le, Phu Quoc...
European Journal of Haematology.  110 (2022)  1 - p. 77-87 , 2022
Link: https://doi.org/10.1111/..
 
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8

The effect of a virtual child disease management programme ..:

Rambod, Masoume ; Pasyar, Nilofar ; Irannejad Parizi, Fatemeh...
Haemophilia.  29 (2022)  1 - p. 199-209 , 2022
Link: https://doi.org/10.1111/..
 
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9

Health‐related quality of life and health status in adolesc..:

Oldenburg, Johannes ; Tran, Huyen ; Peyvandi, Flora...
Haemophilia.  27 (2021)  3 - p. 398-407 , 2021
Link: https://doi.org/10.1111/..
 
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10

Auswirkungen der COVID-19 Pandemie auf die medizinische Ver..:

Halimeh, Susan ; Olivieri, Martin ; Wermes, Cornelia...
Das Gesundheitswesen.  83 (2021)  4 - p. 282-290 , 2021
Link: https://doi.org/10.1055/..
 
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11

The effect of emicizumab prophylaxis on long‐term, self‐rep..:

Skinner, Mark W. ; Négrier, Claude ; Paz‐Priel, Ido...
Haemophilia.  27 (2021)  5 - p. 854-865 , 2021
Link: https://doi.org/10.1111/..
 
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12

Determining meaningful health‐related quality‐of‐life impro..:

von Mackensen, Sylvia ; Catalani, Olivier ; Asikanius, Elina...
Haemophilia.  26 (2020)  6 - p. 1019-1030 , 2020
Link: https://doi.org/10.1111/..
 
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13

BAY 81‐8973 prophylaxis and pharmacokinetics in haemophilia..:

Santoro, Cristina ; Fuh, Beng ; Le, Phu Quoc...
European Journal of Haematology.  105 (2020)  2 - p. 164-172 , 2020
Link: https://doi.org/10.1111/..
 
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14

Health‐related quality of life and caregiver burden of emic..:

Mancuso, Maria Elisa ; Mahlangu, Johnny ; Sidonio Jr, Robert...
Haemophilia.  26 (2020)  6 - p. 1009-1018 , 2020
Link: https://doi.org/10.1111/..
 
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15

Cross‐cultural adaptation and validation of Haem‐A‐QoL in C..:

Lambert, Catherine ; Meité, N'Dogomo ; Sanogo, Ibrahima...
Haemophilia.  26 (2020)  3 - p. 459-466 , 2020
Link: https://doi.org/10.1111/..
 
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