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Tingley, Kylie
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1

Assessing the quality and value of metabolic chart data for..:

Iverson, Ryan ; Taljaard, Monica ; Geraghty, Michael T....
BMC Pediatrics.  24 (2024)  1 - p. , 2024
Link: https://doi.org/10.1186/..
 
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2

Development of a core outcome set for mucopolysaccharidoses..:

Howie, Alison H. ; Wyatt, Alexandra ; Inbar-Feigenberg, Michal...
Molecular Genetics and Metabolism.  138 (2023)  2 - p. 107154 , 2023
Link: https://doi.org/10.1016/..
 
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3

Families' healthcare experiences for children with inherite..:

Chow, Andrea J ; Iverson, Ryan ; Lamoureux, Monica...
BMJ Open.  12 (2022)  2 - p. e055664 , 2022
Link: https://doi.org/10.1136/..
 
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4

Stakeholder perspectives on clinical research related to th..:

In collaboration with the Canadian Inherited Metabolic Diseases Research Network ; Tingley, Kylie ; Coyle, Doug...
Orphanet Journal of Rare Diseases.  16 (2021)  1 - p. , 2021
Link: https://doi.org/10.1186/..
 
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5

Patient and family engagement in the development of core ou..:

Vanderhout, Shelley M. ; Smith, Maureen ; Pallone, Nicole...
Research Involvement and Engagement.  7 (2021)  1 - p. , 2021
Link: https://doi.org/10.1186/..
 
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6

Establishing a core outcome set for mucopolysaccharidoses (..:

Howie, Alison H. ; Tingley, Kylie ; Inbar-Feigenberg, Michal...
Trials.  22 (2021)  1 - p. , 2021
Link: https://doi.org/10.1186/..
 
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7

Correction to: Establishing a core outcome set for mucopoly..:

Howie, Alison H. ; Tingley, Kylie ; Inbar-Feigenberg, Michal...
Trials.  22 (2021)  1 - p. , 2021
Link: https://doi.org/10.1186/..
 
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8

Evaluation of the quality of clinical data collection for a..:

on behalf of the Canadian Inherited Metabolic Diseases Research Network ; Tingley, Kylie ; Lamoureux, Monica...
Orphanet Journal of Rare Diseases.  15 (2020)  1 - p. , 2020
Link: https://doi.org/10.1186/..
 
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9

Outcomes in pediatric studies of medium-chain acyl-coA dehy..:

Canadian Inherited Metabolic Diseases Research Network ; Pugliese, Michael ; Tingley, Kylie...
Orphanet Journal of Rare Diseases.  15 (2020)  1 - p. , 2020
Link: https://doi.org/10.1186/..
 
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10

Developments in evidence creation for treatments of inborn ..:

Stockler‐Ipsiroglu, Sylvia ; Potter, Beth K. ; Yuskiv, Nataliya...
Journal of Inherited Metabolic Disease.  44 (2020)  1 - p. 88-98 , 2020
Link: https://doi.org/10.1002/..
 
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11

Health Care for Mitochondrial Disorders in Canada: A Survey..:

Paik, Karen ; Lines, Matthew A. ; Chakraborty, Pranesh...
Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques.  46 (2019)  6 - p. 717-726 , 2019
Link: https://doi.org/10.1017/..
 
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12

Using a meta-narrative literature review and focus groups w..:

in collaboration with the Canadian Inherited Metabolic Diseases Research Network ; Tingley, Kylie ; Coyle, Doug...
Orphanet Journal of Rare Diseases.  13 (2018)  1 - p. , 2018
Link: https://doi.org/10.1186/..
 
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13

Establishing core outcome sets for phenylketonuria (PKU) an..:

In collaboration with the Canadian Inherited Metabolic Diseases Research Network ; Potter, Beth K. ; Hutton, Brian...
Trials.  18 (2017)  1 - p. , 2017
Link: https://doi.org/10.1186/..
 
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14

Experiences of caregivers of children with inherited metabo..:

on behalf of the Canadian Inherited Metabolic Diseases Research Network (CIMDRN) ; Siddiq, Shabnaz ; Wilson, Brenda J....
Orphanet Journal of Rare Diseases.  11 (2016)  1 - p. , 2016
Link: https://doi.org/10.1186/..
 
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15

Translating rare-disease therapies into improved care for p..:

Potter, Beth K. ; Khangura, Sara D. ; Tingley, Kylie..
Genetics in Medicine.  18 (2016)  2 - p. 117-123 , 2016
Link: https://doi.org/10.1038/..
 
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