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Wong-Rieger, Durhane
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1

Strengthening health systems for access to gene therapy in ..:

Bhatia, Sonal ; Le Cam, Yann ; Carrion, Juan...
Molecular Therapy - Methods & Clinical Development.  32 (2024)  2 - p. 101220 , 2024
Link: https://doi.org/10.1016/..
 
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2

OP100 Patient Perspectives In Value Assessment Frameworks: ..:

Best, Alex ; Tsai, I-Ching ; Tan, Jin Yu...
International Journal of Technology Assessment in Health Care.  39 (2023)  S1 - p. S28-S28 , 2023
Link: https://doi.org/10.1017/..
 
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3

The IRDiRC Chrysalis Task Force: making rare disease resear..:

Beaverson, Katherine L. ; Julkowska, Daria ; Letinturier, Mary Catherine V....
Therapeutic Advances in Rare Disease.  4 (2023)  - p. , 2023
Link: https://doi.org/10.1177/..
 
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4

Developing a Framework of Cost Elements of Socioeconomic Bu..:

Currie, Gillian R. ; Gerber, Brittany ; Lorenzetti, Diane...
PharmacoEconomics.  41 (2023)  7 - p. 803-818 , 2023
Link: https://doi.org/10.1007/..
 
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5

Research on rare diseases: ten years of progress and challe..:

Monaco, Lucia ; Zanello, Galliano ; Baynam, Gareth...
Nature Reviews Drug Discovery.  21 (2022)  5 - p. 319-320 , 2022
Link: https://doi.org/10.1038/..
 
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6

An international comparative analysis of public reimburseme..:

Ward, Leanne Marie ; Chambers, Alexandra ; Mechichi, Emine..
Orphanet Journal of Rare Diseases.  17 (2022)  1 - p. , 2022
Link: https://doi.org/10.1186/..
 
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7

Essential list of medicinal products for rare diseases: rec..:

Gahl, William A. ; Wong-Rieger, Durhane ; Hivert, Virginie...
Orphanet Journal of Rare Diseases.  16 (2021)  1 - p. , 2021
Link: https://doi.org/10.1186/..
 
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8

A call for global action for rare diseases in Africa:

Baynam, Gareth S. ; Groft, Stephen ; van der Westhuizen, Francois H....
Nature Genetics.  52 (2019)  1 - p. 21-26 , 2019
Link: https://doi.org/10.1038/..
 
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9

Model consent clauses for rare disease research:

on behalf of the IRDiRC-GA4GH Model Consent Clauses Task Force ; Nguyen, Minh Thu ; Goldblatt, Jack...
BMC Medical Ethics.  20 (2019)  1 - p. , 2019
Link: https://doi.org/10.1186/..
 
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10

Changes in Patient Knowledge, Attitudes and Usage Preferenc..:

Wong-Rieger, Durhane
Canadian Journal of Diabetes.  42 (2018)  5 - p. S26 , 2018
Link: https://doi.org/10.1016/..
 
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11

Familial hypercholesterolaemia patient support groups and a..:

Payne, Jules ; Williams, Simon ; Maxwell, Diana...
Atherosclerosis.  277 (2018)  - p. 377-382 , 2018
Link: https://doi.org/10.1016/..
 
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12

Author's Reply to Braillon: "Moving from Patient Advocacy t..:

Wong-Rieger, Durhane
The Patient - Patient-Centered Outcomes Research.  10 (2017)  4 - p. 505-505 , 2017
Link: https://doi.org/10.1007/..
 
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13

Moving from Patient Advocacy to Partnership: A Long and Bum..:

Wong-Rieger, Durhane
The Patient - Patient-Centered Outcomes Research.  10 (2017)  3 - p. 271-276 , 2017
Link: https://doi.org/10.1007/..
 
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14

Review of 11 national policies for rare diseases in the con..:

Dharssi, Safiyya ; Wong-Rieger, Durhane ; Harold, Matthew.
Orphanet Journal of Rare Diseases.  12 (2017)  1 - p. , 2017
Link: https://doi.org/10.1186/..
 
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15

OP100 How Health Technology Assessment Is Adapting To Orpha..:

Wong-Rieger, Durhane ; Mills, Ferg
International Journal of Technology Assessment in Health Care.  33 (2017)  S1 - p. 45-46 , 2017
Link: https://doi.org/10.1017/..
 
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Internationale Unternehmung