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Quantifying the impact of symptomatic acute hepatic porphyr..:
Amy Dickey
;
Kristen Wheeden
;
Desiree Lyon
...
https://doi.org/10.1002/jmd2.12343. , 2023
Link:
https://doi.org/10.1002/jmd2.12343
RT Journal T1
Quantifying the impact of symptomatic acute hepatic porphyria on well‐being via patient‐reported outcomes: Results from the Porphyria Worldwide Patient Experience Research (POWER) study
UL https://suche.suub.uni-bremen.de/peid=base-ftdoajarticles:oai:doaj.org_article:887c80c7c03843749b79f3357324015a&Exemplar=1&LAN=DE A1 Amy Dickey A1 Kristen Wheeden A1 Desiree Lyon A1 Sue Burrell A1 Sean Hegarty A1 Rocco Falchetto A1 Edrin R. Williams A1 Jasmin Barman‐Aksözen A1 Marc DeCongelio A1 Alison Bulkley A1 Joana E. Matos A1 Tarek Mnif A1 Jordanna Mora A1 John J. Ko A1 Stephen Meninger A1 Stephen Lombardelli A1 Danielle Nance PB Wiley YR 2023 K1 acute hepatic porphyria K1 acute intermittent porphyria K1 acute porphyria K1 AHP K1 patient‐reported outcomes K1 survey K1 Diseases of the endocrine glands. Clinical endocrinology K1 RC648-665 K1 Genetics K1 QH426-470 JF https://doi.org/10.1002/jmd2.12343 LK http://dx.doi.org/https://doi.org/10.1002/jmd2.12343 DO https://doi.org/10.1002/jmd2.12343 SF ELIB - SuUB Bremen
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