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1 Ergebnisse
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Modified Delphi procedure-based expert consensus on endpoin..:
Daphne H. Schoenmakers
;
Shanice Beerepoot
;
Sibren van den Berg
...
https://doi.org/10.1186/s13023-022-02189-w. , 2022
Link:
https://doi.org/10.1186/s13023-022-02189-w
RT Journal T1
Modified Delphi procedure-based expert consensus on endpoints for an international disease registry for Metachromatic Leukodystrophy: The European Metachromatic Leukodystrophy initiative (MLDi)
UL https://suche.suub.uni-bremen.de/peid=base-ftdoajarticles:oai:doaj.org_article:8c393f5208e146328f0af2066de15352&Exemplar=1&LAN=DE A1 Daphne H. Schoenmakers A1 Shanice Beerepoot A1 Sibren van den Berg A1 Laura Adang A1 Annette Bley A1 Jaap-Jan Boelens A1 Francesca Fumagalli A1 Wim G. Goettsch A1 Sabine Grønborg A1 Samuel Groeschel A1 Peter M. van Hasselt A1 Carla E. M. Hollak A1 Caroline Lindemans A1 Fanny Mochel A1 Peter G. M. Mol A1 Caroline Sevin A1 Ayelet Zerem A1 Ludger Schöls A1 Nicole I. Wolf PB BMC YR 2022 K1 Rare disease registry K1 Rare diseases K1 Metachromatic leukodystrophy K1 MLD K1 Delphi procedure K1 Medicine K1 R JF https://doi.org/10.1186/s13023-022-02189-w LK http://dx.doi.org/https://doi.org/10.1186/s13023-022-02189-w DO https://doi.org/10.1186/s13023-022-02189-w SF ELIB - SuUB Bremen
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