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Using a meta-narrative literature review and focus groups w..:
Kylie Tingley
;
Doug Coyle
;
Ian D. Graham
...
http://link.springer.com/article/10.1186/s13023-018-0851-1. , 2018
Link:
https://doi.org/10.1186/s13023-018-0851-1
RT Journal T1
Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases
UL https://suche.suub.uni-bremen.de/peid=base-ftdoajarticles:oai:doaj.org_article:94b04835bd0a4e088db0ea76039580dd&Exemplar=1&LAN=DE A1 Kylie Tingley A1 Doug Coyle A1 Ian D. Graham A1 Lindsey Sikora A1 Pranesh Chakraborty A1 Kumanan Wilson A1 John J. Mitchell A1 Sylvia Stockler-Ipsiroglu A1 Beth K. Potter PB BMC YR 2018 K1 Rare diseases K1 Evidence generation K1 Comparative effectiveness K1 Patient-oriented outcomes K1 Evidence synthesis K1 Research methods K1 Medicine K1 R JF http://link.springer.com/article/10.1186/s13023-018-0851-1 LK http://dx.doi.org/https://doi.org/10.1186/s13023-018-0851-1 DO https://doi.org/10.1186/s13023-018-0851-1 SF ELIB - SuUB Bremen
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