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1 Ergebnisse
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Assessment of Parental Needs and Quality of Life in Childre..:
Loredana Benedetto
;
Olimpia Musumeci
;
Annunziata Giordano
..
https://www.mdpi.com/2076-328X/13/12/956. , 2023
Link:
https://doi.org/10.3390/bs13120956
RT Journal T1
Assessment of Parental Needs and Quality of Life in Children with a Rare Neuromuscular Disease (Pompe Disease): A Quantitative–Qualitative Study
UL https://suche.suub.uni-bremen.de/peid=base-ftdoajarticles:oai:doaj.org_article:ac87164bca2f4bc89618da5e266abb51&Exemplar=1&LAN=DE A1 Loredana Benedetto A1 Olimpia Musumeci A1 Annunziata Giordano A1 Mattia Porcino A1 Massimo Ingrassia PB MDPI AG YR 2023 K1 childhood rare diseases K1 Pompe disease K1 quality of life K1 parental needs K1 prevention of burden K1 Psychology K1 BF1-990 JF https://www.mdpi.com/2076-328X/13/12/956 LK http://dx.doi.org/https://doi.org/10.3390/bs13120956 DO https://doi.org/10.3390/bs13120956 SF ELIB - SuUB Bremen
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