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Parents as informal caregivers of children and adolescents ..:
Maja Brandt
;
Lene Johannsen
;
Laura Inhestern
.
https://doi.org/10.1186/s13023-022-02407-5. , 2022
Link:
https://doi.org/10.1186/s13023-022-02407-5
RT Journal T1
Parents as informal caregivers of children and adolescents with spinal muscular atrophy: a systematic review of quantitative and qualitative data on the psychosocial situation, caregiver burden, and family needs
UL https://suche.suub.uni-bremen.de/peid=base-ftdoajarticles:oai:doaj.org_article:e702c52dc5fb4dea9c436ce5df541006&Exemplar=1&LAN=DE A1 Maja Brandt A1 Lene Johannsen A1 Laura Inhestern A1 Corinna Bergelt PB BMC YR 2022 K1 Spinal muscular atrophy K1 Caregiver burden K1 Rare disease K1 Psychosocial K1 Family needs K1 Quality of life K1 Medicine K1 R JF https://doi.org/10.1186/s13023-022-02407-5 LK http://dx.doi.org/https://doi.org/10.1186/s13023-022-02407-5 DO https://doi.org/10.1186/s13023-022-02407-5 SF ELIB - SuUB Bremen
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