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1 Ergebnisse
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Modified Delphi procedure-based expert consensus on endpoin..:
Schoenmakers, Daphne H
;
Beerepoot, Shanice
;
van Hasselt, Peter M
...
info:eu-repo/semantics/altIdentifier/issn/1750-1172. , 2022
Link:
https://pub.dzne.de/record/163398
RT Journal T1
Modified Delphi procedure-based expert consensus on endpoints for an international disease registry for Metachromatic Leukodystrophy: The European Metachromatic Leukodystrophy initiative (MLDi)
UL https://suche.suub.uni-bremen.de/peid=base-ftdznevdb:oai:pub.dzne.de:163398&Exemplar=1&LAN=DE A1 Schoenmakers, Daphne H A1 Beerepoot, Shanice A1 van Hasselt, Peter M A1 Hollak, Carla E M A1 Lindemans, Caroline A1 Mochel, Fanny A1 Mol, Peter G M A1 Sevin, Caroline A1 Zerem, Ayelet A1 Schöls, Ludger A1 Wolf, Nicole I A1 van den Berg, Sibren A1 Adang, Laura A1 Bley, Annette A1 Boelens, Jaap-Jan A1 Fumagalli, Francesca A1 Goettsch, Wim G A1 Grønborg, Sabine A1 Groeschel, Samuel PB BioMed Central YR 2022 K1 info:eu-repo/classification/ddc/610 K1 Consensus K1 Humans K1 Leukodystrophy K1 Metachromatic: genetics K1 Quality of Life K1 Registries K1 Retrospective Studies K1 Delphi procedure K1 MLD K1 Metachromatic leukodystrophy K1 Rare disease registry K1 Rare diseases JF info:eu-repo/semantics/altIdentifier/issn/1750-1172 LK http://dx.doi.org/https://pub.dzne.de/record/163398 DO https://pub.dzne.de/record/163398 SF ELIB - SuUB Bremen
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