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1 Ergebnisse
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The road to successful people-centric research in rare dise..:
Francisco, Rita
;
Brasil, Sandra
;
Pascoal, Carlota
...
1750-1172. , 2022
Link:
http://hdl.handle.net/10362/145832
RT Journal T1
The road to successful people-centric research in rare diseases ; the web-based case study of the Immunology and Congenital Disorders of Glycosylation questionnaire (ImmunoCDGQ)
UL https://suche.suub.uni-bremen.de/peid=base-ftnewulisboa:oai:run.unl.pt:10362_145832&Exemplar=1&LAN=DE A1 Francisco, Rita A1 Brasil, Sandra A1 Pascoal, Carlota A1 Jaeken, Jaak A1 Liddle, Merell A1 Videira, Paula A A1 Dos Reis Ferreira, Vanessa YR 2022 K1 Congenital Disorders of Glycosylation (CDG) K1 Electronic (e-) questionnaire K1 Patient empowerment K1 Patient engagement K1 Patient recruitment K1 People-centricity K1 Rare diseases K1 Social media K1 Web-based platforms K1 Genetics(clinical) K1 Pharmacology (medical) JF 1750-1172 LK http://hdl.handle.net/10362/145832 DO http://hdl.handle.net/10362/145832 SF ELIB - SuUB Bremen
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