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Recommendations for Improving the Quality of Rare Disease R..:
Kodra, Yllka
;
Weinbach, Jérôme
;
Posada-De-La-Paz, Manuel
...
info:eu-repo/semantics/altIdentifier/doi/10.3390/ijerph15081644. , 2018
Link:
https://inserm.hal.science/inserm-04374157
RT Journal T1
Recommendations for Improving the Quality of Rare Disease Registries
UL https://suche.suub.uni-bremen.de/peid=base-ftsorbonneuniv:oai:HAL:inserm-04374157v1&Exemplar=1&LAN=DE A1 Kodra, Yllka A1 Weinbach, Jérôme A1 Posada-De-La-Paz, Manuel A1 Coi, Alessio A1 Lemonnier, S Lydie A1 van Enckevort, David A1 Roos, Marco A1 Jacobsen, Annika A1 Cornet, Ronald A1 Ahmed, S Faisal A1 Bros-Facer, Virginie A1 Popa, Veronica A1 van Meel, Marieke A1 Renault, Daniel A1 von Gizycki, Rainald A1 Santoro, Michele A1 Landais, Paul A1 Torreri, Paola A1 Carta, Claudio A1 Mascalzoni, Deborah A1 Gainotti, Sabina A1 Lopez, Estrella A1 Ambrosini, Anna A1 Müller, Heimo A1 Reis, Robert A1 Bianchi, Fabrizio A1 Rubinstein, Yaffa, R A1 Lochmüller, Hanns A1 Taruscio, Domenica PB HAL CCSD; MDPI YR 2018 K1 patient registry K1 quality K1 rare diseases K1 rare diseases patient registry quality K1 MESH: Biomedical Research K1 MESH: Computational Biology K1 MESH: Data Accuracy K1 MESH: Europe K1 MESH: Humans K1 MESH: Information Storage and Retrieval K1 MESH: Quality Improvement K1 MESH: Rare Diseases K1 MESH: Registries K1 [SDV.GEN.GH]Life Sciences [q-bio]/Genetics/Human genetics K1 [SDV.MHEP.PSR]Life Sciences [q-bio]/Human health and pathology/Pulmonology and respiratory tract JF info:eu-repo/semantics/altIdentifier/doi/10.3390/ijerph15081644 LK http://dx.doi.org/https://inserm.hal.science/inserm-04374157 DO https://inserm.hal.science/inserm-04374157 SF ELIB - SuUB Bremen
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