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Collaborative Research and Development of a Novel, Patient-..:

Gilbert, Rose M ; Sumodhee, Dayyanah ; Pontikos, Nikolas...
https://discovery.ucl.ac.uk/id/eprint/10142872/1/Pontikos_Collaborative%20Research%20and%20Development%20of%20a%20Novel,%20Patient-Centered%20Digital%20Platform%20%28MyEyeSite%29%20for%20Rare%20Inherited%20Retinal%20Disease%20Data.pdf. , 2022

Link: https://discovery.ucl.ac.uk/id/eprint/10142872/1/Ponti..

RT Journal
T1 <Title>Collaborative Research and Development of a Novel, Patient-Centered Digital Platform (MyEyeSite) for Rare Inherited Retinal Disease Data: Acceptability and Feasibility Study</Title>

UL https://suche.suub.uni-bremen.de/peid=base-ftucl:oai:eprints.ucl.ac.uk.OAI2:10142872&Exemplar=1&LAN=DE
				
A1 Gilbert, Rose M
A1 Sumodhee, Dayyanah
A1 Pontikos, Nikolas
A1 Hollyhead, Catherine
A1 Patrick, Angus
A1 Scarles, Samuel
A1 Van Der Smissen, Sabrina
A1 Young, Rodrigo M
A1 Nettleton, Nick
A1 Webster, Andrew R
A1 Cammack, Jocelyn
PB JMIR Publications Inc.
YR 2022
K1 MyEyeSite
K1 inherited retinal diseases (IRD)
K1 rare diseases
K1 genetics
K1 ophthalmology
K1 digital health
K1 eye data
K1 GDPR
K1 subject access request (SAR)
K1 mobile phone
JF https://discovery.ucl.ac.uk/id/eprint/10142872/1/Pontikos_Collaborative%20Research%20and%20Development%20of%20a%20Novel,%20Patient-Centered%20Digital%20Platform%20%28MyEyeSite%29%20for%20Rare%20Inherited%20Retinal%20Disease%20Data.pdf
LK http://dx.doi.org/https://discovery.ucl.ac.uk/id/eprint/10142872/1/Pontikos_Collaborative%20Research%20and%20Development%20of%20a%20Novel,%20Patient-Centered%20Digital%20Platform%20%28MyEyeSite%29%20for%20Rare%20Inherited%20Retinal%20Disease%20Data.pdf
DO https://discovery.ucl.ac.uk/id/eprint/10142872/1/Pontikos_Collaborative%20Research%20and%20Development%20of%20a%20Novel,%20Patient-Centered%20Digital%20Platform%20%28MyEyeSite%29%20for%20Rare%20Inherited%20Retinal%20Disease%20Data.pdf
SF ELIB - SuUB Bremen

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