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Global reach of over 20 years of experience in the patient-..:

Wanner, Christoph ; Ortiz, Alberto ; Wilcox, William Ross...
info:eu-repo/semantics/altIdentifier/doi/10.1016/j.ymgme.2023.107603. , 2023

Link: https://hal.science/hal-04191731

RT Journal
T1 <Title>Global reach of over 20 years of experience in the patient-centered Fabry Registry: Advancement of Fabry disease expertise and dissemination of real-world evidence to the Fabry community</Title>

UL https://suche.suub.uni-bremen.de/peid=base-ftuniversailles:oai:HAL:hal-04191731v1&Exemplar=1&LAN=DE
				
A1 Wanner, Christoph
A1 Ortiz, Alberto
A1 Wilcox, William Ross
A1 Hopkin, Robert J
A1 Johnson, Jack
A1 Ponce, Elvira
A1 Ebels, Johan T
A1 Batista, Julie L
A1 Maski, Manish
A1 Politei, Juan Manuel
A1 Martins, Ana María
A1 Banikazemi, Maryam
A1 Linhart, Aleš
A1 Mauer, S. Michael
A1 Oliveira, João Paulo
A1 Weidemann, Frank
A1 Germain, Dominique Paul
PB HAL CCSD; Elsevier
YR 2023
K1 agalsidase beta
K1 enzyme replacement therapy
K1 Fabry disease
K1 natural history
K1 real-world data
K1 Registry
K1 [SDV]Life Sciences [q-bio]
JF info:eu-repo/semantics/altIdentifier/doi/10.1016/j.ymgme.2023.107603
LK http://dx.doi.org/https://hal.science/hal-04191731
DO https://hal.science/hal-04191731
SF ELIB - SuUB Bremen

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