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"Just tell me what's going on": The views of parents of chi..:
Andrews, Sara M
;
Raspa, Melissa
;
Edwards, Anne
...
Journal of the American Medical Informatics Association. 27 (2020) 3 - p. 429-436 , 2020
Link:
https://doi.org/10.1093/jamia/ocz208
RT Journal T1 <Title>"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record</Title> UL https://suche.suub.uni-bremen.de/peid=cr-10.1093_jamia_ocz208&Exemplar=1&LAN=DE A1 Andrews, Sara M A1 Raspa, Melissa A1 Edwards, Anne A1 Moultrie, Rebecca A1 Turner-Brown, Lauren A1 Wagner, Laura A1 Alvarez Rivas, Alexandra A1 Frisch, Mary Katherine A1 Wheeler, Anne C PB Oxford University Press (OUP) YR 2020 SN 1527-974X JF Journal of the American Medical Informatics Association VO 27 IS 3 SP 429 OP 436 LK http://dx.doi.org/https://doi.org/10.1093/jamia/ocz208 DO https://doi.org/10.1093/jamia/ocz208 SF ELIB - SuUB Bremen
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