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Framework for Multistakeholder Patient Registries in the Fi..:

Schoenmakers, Daphne H. ; van den Berg, Sibren ; Timmers, Lonneke...
Neurology. 103 (2024) 6 - p. , 2024

Link: https://doi.org/10.1212/wnl.0000000000209743

RT Journal
T1 <Title>Framework for Multistakeholder Patient Registries in the Field of Rare Diseases: Focus on Neurogenetic Diseases</Title>

UL https://suche.suub.uni-bremen.de/peid=cr-10.1212_wnl.0000000000209743&Exemplar=1&LAN=DE
				
A1 Schoenmakers, Daphne H.
A1 van den Berg, Sibren
A1 Timmers, Lonneke
A1 Adang, Laura A.
A1 Bäumer, Tobias
A1 Bosch, Annet
A1 van de Casteele, Marc
A1 Datema, Mareen R.
A1 Dekker, Hanka
A1 Donnelly, Conan
A1 Driessens, Mariëtte H.E.
A1 Graessner, Holm
A1 Greger, Valerie
A1 Haddad, Tala
A1 Höglinger, Günter U.
A1 van den Hout, Hannerieke
A1 Jonker, Carla
A1 Langeveld, Mirjam
A1 Lambert, Laurie J.
A1 Neacy, Eileen
A1 Nieuwland, Marc
A1 Klockgether, Thomas
A1 van der Knaap, Marjo S.
A1 Papadopoulou, Andri
A1 Plueschke, Kelly
A1 van Rijn, Sanne
A1 Rosenberg, Noa
A1 Saunier-Vivar, Elise F.
A1 dos Santos Vieira, Bruna
A1 Hollak, Carla E.M.
PB Ovid Technologies (Wolters Kluwer Health)
YR 2024
SN 0028-3878
SN 1526-632X
JF Neurology
VO 103
IS 6
LK http://dx.doi.org/https://doi.org/10.1212/wnl.0000000000209743
DO https://doi.org/10.1212/wnl.0000000000209743
SF ELIB - SuUB Bremen

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